We use medicines to make our children better, but sometimes they have other effects that we don’t want (side-effects).

Your child may get the following side-effects when they first start taking ubidecarenone. These should wear off as your child’s body gets used to the medicine. If they are still a problem after a week or so, contact your doctor:

Your child may have stomach ache or cramps, feel sick or be sick (vomit). It may help to give each dose of ubidecarenone with some food.

They may have diarrhoea. Encourage them to drink plenty of fluid so that they do not get dehydrated.

They may not feel hungry. Encourage your child to eat lots of small meals.

Rarely, your child may get headaches, feel dizzy or have changes in mood (for example, be irritable or agitated).

There may sometimes be other side effects that are not listed above. If you notice anything unusual and are concerned, contact your doctor.

Can other medicines be given at the same time as ubidecarenone?

You can give your child medicines that contain paracetamol or ibuprofen, unless your doctor has told you not to.

Check with your doctor or pharmacist before giving any other medicines to your child. This includes herbal and complementary medicines.

Is there anything else I need to know about this medicine?

The metabolic diseases vary widely between children and it may take some time to find a medicine that helps with the symptoms. It is important that you continue to give ubidecarenone regularly.

General advice about medicines

Try to give medicines at about the same times each day, to help you remember.

If you are not sure a medicine is working, contact your doctor but continue to give the medicine as usual in the meantime. Do not give extra doses, as you may do harm.

Only give this medicine to your child. Never give it to anyone else, even if their condition appears to be the same, as this could do harm.

Make sure that you always have enough medicine. Order a new prescription at least 2 weeks before you will run out.

Make sure that the medicines you have at home have not reached the ‘best before’ or ‘use by’ date on the packaging. Give old medicines to your pharmacist to dispose of.